Unless you have experienced the life with a medically fragile child, it's very difficult to understand what our families our facing. 

While we would like to have the same privacy as others, its simply not feasible when we depend on care managers, therapists, durable medical providers, and nurses to come to our home to ensure we have what we need to care for our children. 

Some of our families have been willing to further open their homes and share their experiences in effort to educate the public on our families needs and why more support is needed.